Our journey

Our journey

It's been a year since I held my tiny perfect newborn in a dark quite room for 3 hours, hoping she would sleep soundly and avoid sedation for her ABR. The quite whispers, adjustments and looks on the audiologists faces made my stomach knot as my arm went numb holding her sleeping body still.
I wish I could go back to me, this day last year. I had no idea how "ok"everything would be. I felt like my world turned upside down when I heard the words "Molly has hearing loss." I couldn't mentally process what this new world meant, what her future would be like. Hearing aids on a baby!?! I never even knew they did that!!!

Once we got comfortable and felt like we had a grasp on life. We learned Emma at age 5 would also need to be aided.

I've learned since that day that many other families are on a similar path. Those hospital newborn tests are so important. Learning that your child has hearing loss isn't anything bad! It's just unexpected. The cost of hearing loss is expensive, even if your insurance covers some. The amount of ear molds a baby needs, the trips back and forth, the batteries! The routine testing. Some insurances don't cover hearing devices! I never knew any of this. This was what started Carly's foundation Lemon-aids! She couldn't believe that some children had to simply go without the devices they needed because of money.
I will forever be thankful for this community for helping us see that this is a beautiful world. Our world has become so amazing over something we thought was a loss. We didn't loose anything this day a year ago. We gained, we gained new insight, new perspective, new strength, new friends, new language, new hope and a new purpose.
I'm here, if you need advice, if you want to talk. I'm here if you want to learn more. If you want to help others. I'm here if you're new to this and scared, overwhelmed and sad. Me a year ago was too...
We're here if you need help. You're not alone!

(Emma's summer goal was to learn a song in ASL. This was her choice.❤️)
(I keep getting messages asking about Molly's "headband" both girls use Ear Suspenders to retain their devices, I highly recommend them we LOVE ours!!)